There's No Place Like Home!!

Sitting in room 3016 at The Peyton Manning Children's Hospital on Sunday evening Ayden looks at me and says, "Daddy I want to go to my lovely home." We were all anxious and excited because earlier that day the doctors told us that we would be going home after a 5 day stay in the hospital.  In my last post I told you how Ayden was not feeling well and that he had Pneumonia and RSV.  On Wednesday the 22nd which happened to be my birthday I got a call from Becky that said that she did not feel Ayden was getting any better and was actually worse.  We called his pulmonologist and they wanted us to get him to the ER right away.  I left work and we took him to the ER in Greensburg.  His oxygen saturation at that point was 86, it shuold be above 96.  They started an IV to get him more fluids and put him on Oxygen.  St Vincents hospital in Indy was notified and he would be transported by ambulance to the hospital.  WE spent about 4 hours in Greensburg before heading to Indy.  Over the course of the next 5 days we were on a wild roller coaster ride.  The doctors kept telling us that they are treating the symptoms that Ayden has but there is no way to tell if they are due to Pneumonia and RSV or if it his Mitochondrial Disease kicking in.  We have been warned that any illness can have grave consequences for Ayden.  Each abnd every night Mommy "slept" in the bed with Ayden and I slept on the love seat in his room.  Mommy did not leave his side at all. I had to mae a couple trips back to pick up Courtney and Oakley so that they could see Ayden.  I cannot tell yu just how scared and nervous we were.  On Thursday evening the fever finally broke.  That was a great sign that maybe Ayden would be making a quick turnaround.  Each night while we were there Ayden would have a coughing attack and it sometimes lasted for hours.  It was so bad that we wanted to cry for him.  They were so violent and wet but nothing was coming up.  I just don't know how one little boy could cough so much.  As Ayden continued to improve our hopes of coming home soon also improved.  On Saturday morning the doctors came in and told us that we would probably be there until at least Monday and possibly as long as 2 weeks.  One of the treatments that Ayden was put through was called Therma Flow, this forces warm ain into the lungs and helps force open the tiny capillaries that may not open just on normal oxygen.  He also was getting around the clock breathing treatments, percussion therapy which means a lot of banging on his back and chest.  These would occur every 2 hours. Late Saturday afternoon after Ileft to Oakley back to Westport to get ready for his big junior high dance, Ayden was taken off of all oxygen and Therma Flow, his oxygen would nevr drop below 95 from that point on.  He was still coughing a little bit but he felt better.  When we aasked how he felt we always got the same snswer, "Not Good."  Becky called me and said that Ayden really wanted to see Daddy and I could ot wait to get back to see my baby, when I walked in the room he had the biggest smile on his face.  This was something that we had not seen in more than a week. If you have ever met or seen pics of Ayden you know that his smile can light up a room and melt a daddys heart.  It was so refreshing to see and it helped us to relax a little seeing his improvement.  On Sunday Ayden ate a very big breakfast his favorite food at the hospital was potatoe stars, they were tator tots shaped like stars and he had them for every meal.  I think he could have eaten 50 a meal if he could have gotten his hands on them.  If you know where we can find them please let me know.  After breakfast he had a terrible coughing fit and resulted in him throwing up a whole lot of potatoe stars but alos a great deal of Mucus and after the last bit came out it was like Magic.  He was a whole different person.  Getting all of that out of his system made him feel so much better.  By that afternoon the doctors did not see any reason to keep him there.  He was off all oxygen, no new medicine and was back to his normal levels of breathing treatments.  We were so relieved and excited but also scared.  I will forever remember sitting and looking out the window with Ayden and him saying , "Daddy I want to go to my lovely home."
I am amazed at the power of prayer.  Ayden had so many people praying for him.  Most of which were people that we have never met.  I want to thank each and every one of you.  To all the readers of this blog, all the workers in the Jennings County Schools, To all that follow any of my family on facebook, or twitter, to all of HOOSIER NATION, our family and friends thank you and GOD BLESS!!!  If you have been praying for Ayden and want to share please do so in the comment section.